Resources for Families with CYSHCN

CSH program documents

Transitions Resources

Family Support Services in Wyoming

National Organizations Dedicated to CYSHCN


 

 

 

CSH program documents

 

 D-1 Diagnostic Evaluation Policy 

 

D-2 CSH Guidelines for Parents

 

 

Packaging Wisdom 

 

 

Medical Condition Sheets for Parents

 

 

Autistic Spectrum Disorder

Cerebral Palsy

Cystic Fibrosis

Diabetes Mellitus Type I

Juvenile Idiopathic Arthritis

Osteogenesis Imperfecta

Tympanostomy Tubes

 

 

Bleeding Disorders

Convulsive Disorders

Developmental Delay

Esotropia/Exotropia and  Amblyopia

Neurofibromatosis

Retinopathy of Prematurity  

 

 

 

 

 

Family Support Services in Wyoming:

 

Safe Kids of Wyoming

800-994-GROW (4769)

www.safekidswyoming.org/

 

"In partnership with the United Medical Center Foundation, the SAFE KIDS of Wyoming Coalition, with a network of 11 chapters located statewide, is committed to reducing unintentional injury in children and adolescents."

 

Parent Information Center (PIC)

800-660-9742

www.wpic.org/default.htm

 

PIC publishes a bi-monthly newsletter and provides information on disabilities, training, and workshops for parents and professionals.

 

UPLIFT  

888-UPLIFT3 (888-875-4383)

www.upliftwy.org

 

UPLIFT Support and Advocacy Services are available to families of children with mental health issues, disabilities, special needs and risk factors.

 

Developmental Disabilities Division (DDD) 800-895-2941

 

The Family Consultant provides support, information, and training for families with young children who have disabilities.

 

Wyoming Children’s Action Alliance

800-400-3999

www.wykids.org

 

"A non-profit organization with three primary purposes that directly and indirectly impact positive outcomes for children and families in Wyoming: Professional Development, Data Collection and Dissemination, and Active Advocacy"

 

The Compassionate Friends- Wyoming Chapter 

http://www.compassionatefriends.org/ 

 

"The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive."

To access Wyoming chapter information, click on Chapter Locator.

 

Jason's Friends Foundation

(307) 235-3421

http://www.jasonsfriends.com/

 

"Our mission is to assist Wyoming families with children suffering from brain or spinal cord tumors and childhood cancers by providing advocacy, helping hands and encouragement in the face of despair."

 

 

 

National Organizations Dedicated to CYSHCN

 

 

Healthy and Ready to Work

 

 Website

"We provide information and connections to health and transition expertise nationwide – from those in the know, doing the work and living it!

This site focuses on understanding systems, access to quality health care, and increasing the involvement of youth. It also includes provider preparation plus tools and resources needed to make more informed choices!"

Champions for Inclusive Communities

 Website

 

"ChampionsInC was a national center designed to support communities in organizing services for families of children and youth with special health care needs. The ChampionsInC project ended June 2010."

 

National Center for Hearing Assessment and Management- Utah State University

 Website  

 

"NCHAM serves as the National Resource Center for the implementation and improvement of comprehensive and effective Early Hearing Detection and Intervention (EHDI) systems. As a multidisciplinary Center, our goal is to ensure that all infants and toddlers with hearing loss are identified as early as possible and provided with timely and appropriate audiological, educational, and medical intervention."

 

 

Catalyst Center

 

 Website

 

"The Catalyst Center is a national center dedicated to improving health care coverage and financing for CYSHCN."

 

 

National Center for Medical Home Implementation

 

 Website

 

"This resource is for health professionals, families, and anyone interested in creating a medical home for all children and youth."

 

 

National Center for Cultural Competence- Georgetown University

 

 Website

 

"The mission of the NCCC is to increase the capacity of health care and mental health care programs to design, implement, and evaluate culturally and linguistically competent service delivery systems to address growing diversity, persistent disparities, and to promote health and mental health equity."

 

 

Family Voices

 

 Website

 

"Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities."